While there has been extensive research demonstrating racial disparities in pain reporting and management, this is, to our knowledge, the first published research leveraging oncology electronic patient-reported outcomes (ePROs) and nursing care management intervention data that further demonstrate disparities at the point-of-care.
Digital health solutions can be used to support the cancer patient journey and we demonstrated high utilization in an array of sociodemographic variables in our population. However, tools designed and implemented with different populations in mind to reduce staff burden and lessen the digital divide should be further explored.
Navigating Cancer in collaboration with Texas Oncology executes large-scale patient engagement study revealing high digital health solution engagement while demonstrating the opportunity to increase support for diverse patient populations. Scientific and technological advancements have helped enhance cancer care and access to care.
Genentech and Navigating Cancer researchers analyzed data from more than 200K people living with cancer, found that most communities of color have limited access and online communication with oncologists on digital health platforms.
In a study of real-world ePRO implementation, Texas Oncology targeted cancer patients initiating systemic therapy to enroll in the Health Tracker ePRO digital monitoring program. The process included patient screening, introduction to the program, enrollment, initiation, observation, and intervention through the triage board workflow. There was a 65% ePRO compliance rate in the 4375 patients enrolled, as well as high participation rates among patients 65 years and older, those completing ePROs via text message, and patients on oral treatment.
There are currently over 500,000 head and neck (H&N) cancer survivors in the general population and the number is expected to continue to grow. Pain is common among survivors and it is associated with adverse quality of life and treatment outcomes. We aimed to describe sociodemographic correlates of patient-reported pain among H&N cancer patients receiving care in the community setting.
Nosayaba Osazuwa-Peters, DMD MPH PhD, Rylan Larsen, PhD, Amila Patel, PharmD BCOP, Sanjit Misra, MBA, Ben Pearson, MS MBA, Blaine Smith, MD, Julia Canick, MD, Duaa Kuziez, MD, Rebecca L Rohde, MD MPH
In order to assess our own healthcare resource utilization, Texas Oncology embarked on a quality initiative and found that most ED visits occurred during regular business hours. Prolonged patient call back times were consistently rated poorly on satisfaction surveys and often led to ED visits for symptoms that could be managed in our offices. Initially we had no insight into call back times. We then partnered with Navigating Cancer (NC) to implement an electronic patient management technology solution with the goal of improving symptom resolution while also providing a tool to minimize staff burden.
Lalan S. Wilfong, Amila M. Patel, Lance Ortega, Rhonda Boren, Ben Pearson, Terry Lynn Jensen, Holly Books, Kathryn Elizabeth Hudson, Debra A. Patt
This Texas Two-Step study, a two-part (hybrid) implementation-effectiveness evaluation of Navigating Cancer’s ePRO digital monitoring tool with a stepped-wedge design, will assess both patient and organization-level outcomes at Texas Oncology, a large community oncology practice, according to the RE-AIM framework – reach, effectiveness, adoption, implementation, and maintenance.
Debra A. Patt, Lalan S. Wilfong, Kathryn Elizabeth Hudson, Amila M. Patel, Holly Books, Lance Ortega, Ben Pearson, Rhonda Boren, Shrutika Patil, Kristin Olson-Celli, Ethan M. Basch
Digital monitoring strategies that include electronic patient reported outcomes (ePRO) measures to monitor symptoms among cancer patients have been shown to be effective in improving patient outcomes in a large academic setting and across several smaller multi-center trials. However, demonstration of clinical utility in the real-world setting must incorporate patient and provider perspectives of ePRO programs to ensure successful implementation.We sought to understand perceptions among patients and clinicians in our ePRO digital symptom monitoring program.
Debra A. Patt, Amila Patel, Lalan S. Wilfong, Holly Books, Lance Ortega, Max Franklin, Sarah Croft, Angela M. Stover, Rhonda Boren, Ethan M. Basch