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Myelodysplastic Syndrome Discussions

Latest Posts to Myelodysplastic Syndrome Discussions

Thank goodness, I took out a good policy 7 months BEFORE I was diagnosed. I know there are some insurance companies that do not ask health questions. I would try to get a small policy there first...
  • Sun Nov 3, 2013 · Like1
I'm Lamama, and I'm a survivor of Stage 3 Rectal Cancer
Cindy M., I was diagnosed with stage 4 rectal cancer 9/2012 . I did 28 days of combined xeloda and radiation ( 5 days a week, weekends off), then had surgery( sigmoidectomy resection)No lymph nodes...
  • Sat Nov 2, 2013 · Like1
Hi, I'm Nancy J C.
Hello I'm a 72 year old female. Has anyone been on Navelbine (chemo) for treatment ? If so what has been your side effects or experiences? Thank you in advance I was diagnosed in June 2012 with br...
  • Sun Oct 27, 2013 · Like1
I'm dave, and I'm an AML/MDS cancer survivor
I know the mouth thing can be discouraging, but to all I say -- please be patient ... it will clear up once your blood numbers get back to normal (and even if they never quite make it back -- mine ...
  • Sat Oct 26, 2013 ·
I'm pam, and I support someone with cancer
I have a question. 15 months ago my husband had surgery to remove an encapsulated carcinoma ex pleomorphic adenoma. Dr said ot was just turning malignant. All that was needed was surgery. 7 months ...
  • Thu Oct 24, 2013 ·
Hi, I'm Karen G.
The book I loved was Eating Well Through Cancer: Easy Recipes & Recommendations During & After Treatment by Holly Clegg. It is arranged by side effects too. By the way - I was lactose intolerant du...
  • Wed Oct 23, 2013 · Like6
Hi, I'm Maureen Pitts
My opinion only --- but I would just have surgery to remove. What do doctors say?
  • Wed Oct 23, 2013 ·
I was recently diagnosed with myelofibrosis also..I am taking 10 mg of JAKAFI in the am and 5 in the pm. Would also be interested in advice/experience..
  • Mon Oct 21, 2013 · Like1


I'm Donald P B., and I'm a survivor of Myelodysplastic Syndrome
Not sure what kind of comments you are looking for. I was diagnosed with MDS about two years ago with AML Leukemia essentially present. Being 45 and my blood results not recovering from the induc...
  • Sat Oct 19, 2013 · Like1
Are you in the DSM area? Would you like to get together?
  • Tue Oct 15, 2013 ·

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