Navigating Cancer at 2011 ASCO Annual Meeting

2011 June 1
by Brendon Smyth

Navigating Cancer CEO, Gena Cook, and VP of Business Development, Greg Maxfield, will be attending the 2011 ASCO annual meeting in Chicago this weekend, June 3 – 7. Gena and Greg will be demoing our patient portal solution and the many benefits it offers to both clinics and advocacy groups. If you’d like to schedule a time to learn more and see a demo, please send an email to greg@navigatingcancer.com. See you in Chicago!

Gena Cook’s ACCC presentation recap

2011 May 16

In March, Navigating Cancer CEO, Gena Cook, spoke at the 2011 Association of Community Cancer Centers (ACCC) annual meeting about the HITECH Act Meaningful Use rules, and what impact the new technology will have on patients and their families. Value-Based Cancer Care Magazine covered the meeting and published a recap of Gena’s presentation in their April issue. You can read the article at the link below.

Implementing the HITECH Meaningful Use Rules in Oncology Practices

ACCC also has a link to a pdf download of the slides from Gena’s presentation on their website, as well as links to slides from all the other presenters.

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Cancer and the environment

2011 April 22
by Brendon Smyth

Cancer and the Environment

Today is Earth Day, an opportunity to reflect on the impact we each have on the planet (as individuals and as companies), but also a day to consider how the products and foods we consume can have an impact on us. Living organisms all share three common bonds, they eat, breathe and grow. Be it micro-organisms, plants, trees, animals, or people, we all take sustenance from the earth, and by the transitive property, what goes into the earth/water/air goes into us.

Cancer and Environmental Risk Factors

The National Cancer Institute has a section of their website dedicated to education about cancer and the environment, highlighting factors that can increase your risk of cancer, many of which can be minimized based on lifestyle choices. The following are the top avoidable environmental risk factors and the proportion of cancer deaths that have been linked to each. For example, 29-31% of cancer deaths can be linked to tobacco.

  1. Tobacco  29-31%
  2. Diet  20-50%
  3. Infections (bacteria, viruses)  10-20%
  4. Ionizing and UV light  5-7%
  5. Occupation  2-4%
  6. Pollution (air, water, food) 1-5%

Researchers have estimated that as many as 2 in 3 cases of cancer (67%) are linked to some type of environmental factor. However, environmental exposure on it’s own does not cause cancer. It’s the gene-to-gene interactions that occur inside each of us that can cause cancer in one person, and not in another, when both are exposed to similar environmental factors.

Have you made “green” changes in your lifestyle habits?

While much of the focus for Earth Day is on preserving our natural resources and the health of the planet, we encourage you to also think about how you can reduce the environmental factors that increase your risk for cancer.

  • Have you made any changes in your lifestyle to reduce your environmental cancer risks? If so, what?
  • Did you make the changes before or after you were diagnosed?
  • If after, how big an impact did your diagnosis have on your decision?

Related Links

Meaningful Use Rules: The Basics

2011 April 19
by Gena Cook

Meaningful Use Rules: The Basics

Over the past couple of months, I’ve been invited to speak about HITECH and Meaningful Use at a number of oncology state society meetings (Texas/Colorado/Oklahoma/New Mexico, Florida, North Carolina, Alabama) and at the ACCC annual gathering, and have received a number of questions about what Meaningful Use is and what it means for oncology clinics. While I’ve been speaking on what it means for patients and their families, it’s clear that healthcare professionals have different levels of understanding about the new legislation and what it means for their practice. Overwhelmingly, most healthcare professionals I speak with have a desire to receive the incentives. The timing in which each practice will qualify for the incentives is more varied, with some practices striving to meet the objectives this year and others that are just starting to learn about what they need to do.

To help answer some of those questions and provide more clarity, I’m going start posting my thoughts here on our blog, and invite the oncology and health IT community to use this as a forum to raise questions and discuss the topic. To follow the conversation you can subscribe to our blog via email (join via right side bar), rss feed, or bookmark the meaningful use tag to see all blog posts on the topic.

Meaningful Use History

In February 2009, President Obama signed into law the American Recovery and Reinvestment Act (ARRA), a multi-billion dollar stimulus package that included incentives for the health care industry to integrate information technology into their daily operations. Specifically, the Health Information Technology for Economic and Clinical Health (HITECH) Act, allocates $19 billion to encourage the adoption of electronic health records (EHR’s) with the goal of improving the quality, efficiency and safety of the nation’s healthcare system.

Stages of Meaningful Use

There are three stages to meaningful use, and each stage will come with additional rules and measures to qualify for incentive payments. Stage 1 began in 2011, Stage 2 will begin in 2013, and Stage 3 will begin in 2015.

Stage 1 is focused on capturing health information electronically in a structured database, using that information to track conditions, communicating that information for care coordination, and starting the reporting process of clinical quality measures and public health information.

Stage 2 will expand on Stage 1 in the areas of disease management, clinical decision support, medication management support, patient access to their health information, transitions in care, quality measurement, and bi-directional communication with public health agencies.

Stage 3 will focus on achieving improvements in quality, safety and efficiency, focusing on decision support, patient access to self-management tools, access to comprehensive patient data, and improving population health outcomes.

Meaningful Use Incentives, Penalties and Timeline

Carrot vs. the stick. Photo by D Sharon Pruitt on Flickr

“Nineteen billion!” you exclaim, “How much of that can I qualify for?” Eligible physicians who implement an electronic health record system can receive up to $63,750 if they primarily treat Medicaid patients and $44,000 if they primarily treat Medicare patients.

To receive the maximum incentive payments, Medicare eligible professionals must begin participation by 2012. Penalties for not complying begin January 2015, and are equal to a one percent reduction of the physician’s annual Medicare payments per year up to five percent.

More information is available on the EHR Incentive Program page on the Centers for Medicaid and Medicare Services (CMS) website.

Meaningful Use Rules

In order to receive the payments, you must show that you’ve put the system to “meaningful use” in your practice. To establish the criteria for determining if a system is being used in a meaningful way, the CMS issued the final rules for Stage One in July of 2010. These rules outline a set of standards and conditions for the implementation of an electronic health record system. For Stage One, there are 25 rules total, 15 that make up the “core set” which every clinic must meet to qualify for the incentives, and 10 that make up the “menu set”, of which clinics can pick any 5 of the 10. A regulation buffet, delicious!

So that brings us to where we are today. In future posts, I’ll talk about the 25 specific meaningful use rules that need to be implemented, the measures you must meet to qualify for the incentive payments, what to look for when evaluating solutions, why patient portals will need to be part of the overall solution, and more.

If you’d like to jump ahead, you can see all the rules on our meaningful use rules page, or you can download a copy of the meaningful use rules for future reference.

Questions? Ideas for future posts? Meaningful use specifics you’d like to know more about? Please leave questions and ideas in comments below and I’ll address them as I can.

Search and Navigation Improvements

2011 April 12
by Brendon Smyth

Today we released some navigation changes to simplify searching and finding resources on the site. Members and non-members will find it easier to customize their searches to find the specific content they’re looking for.

New Explore Navigation Box

The Explore navigation box is located on the left side of each page. You can now filter your search parameters by any combination of cancer type, resource type and journey phase. You can also search by keyword, which we’ve moved from the top right of the page to the explore box.

The journey phase filter is new, and refers to the different phases you go through during your cancer journey; understanding (pre-treatment), treating, and monitoring (post-treatment).

For example, if you were looking for shared experiences from our members about monitoring breast cancer, you would select these three filters and it would return content that fit those search parameters. To widen your search, select all for each search category.

For members, the navigation bar in the top right corner of each page when you’re signed in has been improved as well. We’ve added an explore link so you can access the new explore navigation from any page on the site, and have added a drop down menu which is where the links that used to be on the top of the page are now located. We also included a link to your settings page so you can more easily update your profile.

Small changes but we think they’ll have a big impact on making it easier to find more of the great content that’s available on Navigating Cancer. Let us know what you think!

Cancer News: February 2011

2011 March 25
by Brendon Smyth

Every weekday we track the mainstream news media to see what’s making headlines in the world of cancer and share the most interesting ones with our followers on Twitter. Below is a round up of the cancer news articles that caught our attention in February, with links to the full stories.

Any significant cancer news articles that we missed? Any of these resonate with you more than others? Let us know in comments. To get the most recent updates follow us on Twitter @NavCancer, and click the cancer news tag to see news round ups from other months.

Cancer News: February 2011

  1. Your allergies might protect against brain cancer. (MSNBC) http://on.msnbc.com/icVUCh
  2. Experts say simple life changes could prevent 35% of cancer. Eat healthier, drink less, exercise more. (Reuters) http://ow.ly/3RQbS
  3. More candor urged in care of dying cancer patients. ASCO creates guide to help families with difficult topic http://ow.ly/3SyKicancer news articles
  4. Good news for breast cancer patients: Some women can keep lymph nodes, avoid painful lymphedema surgery (USA Today) http://usat.ly/g82gUk
  5. Balding in your 20s? You could be at increased risk of prostate cancer (Time) http://su.pr/2bggU8
  6. A rare form of dwarfism may hold key to fighting cancer, diabetes and living longer (Time) http://su.pr/2QRuqQ
  7. The chemicals that give soda its caramel flavor might also cause cancer (Time) http://su.pr/1nbPwo
  8. When Patients Share Their Stories, Health May Improve (NY Times) http://ow.ly/3UYSD
  9. Study: PSA rise not good prostate cancer predictor (MSNBC) http://on.msnbc.com/gOVL4J
  10. Cut red meat to lower cancer risk (USA Today) http://usat.ly/g6oj5S
  11. Study: Microchip spots cancerous tumors within an hour (USA Today) http://usat.ly/fHa65i
  12. Best to Start Chemo by 4 Weeks After Colorectal Surgery (Oncology Times) http://twurl.nl/eudfap
  13. Why pediatricians want to ban teens from tanning salons (Time) http://su.pr/1h5c5X
  14. Having more kids may increase aggressive breast cancer risk (MSNBC) http://on.msnbc.com/eu7Jzu
  15. Fish oil builds muscle mass in cancer patients (MSNBC) http://on.msnbc.com/fXj4mI

Related links

Colon Cancer Screening

2011 March 22
by Brendon Smyth

March is colon cancer awareness month, and we wanted to help raise awareness for a free or low cost colon cancer screening program offered by the CDC for low income and underinsured individuals in 25 states.

What is colon cancer screening?

Colon cancer screening is looking for colon cancer before you show any signs of symptoms. When abnormal tissue or cancer is found early, it can be easier to treat whereas once you begin to show symptoms of colon cancer it may have begun to spread.

When should you start screening for colon cancer?

The Center for Disease Control (CDC) recommends that everyone over 50 get regular colon cancer testing to look for precancerous polyps in the colon. When found early polyps can be removed before becoming cancerous. Those who have a high risk of colon cancer should talk to their doctor about starting colon cancer screening earlier than 50. You have a higher risk of colon cancer if there is a history of colon cancer in your immediate family, you have inflammatory bowel disease, or you have genetic syndroms such as hereditary non-polyposis colorectal cancer or familial adenomatous polyposis (FAP).

What are the tests used to screen for colon cancer?

colon cancer screening

Inflatable Super Colon from PreventCancer.org

The following tests may be used to screen for colon cancer:

  • Physical exam and history
  • Fecal occult blood test
  • Digital rectal exam
  • Barium enema
  • Sigmoidoscopy
  • Colonoscopy
  • Biopsy
  • Virtual colonoscopy

Click the following link for more details about the above colon cancer testing procedures.

Find Free or Low Cost Colon Cancer Screening

The CDC provides funding to 25 states for a Colorectal Cancer Control Program aimed at providing colon cancer screening services to low income men and women aged 50 – 64 years who are uninsured or underinsured. If you live in one of the funded states, you may be eligible.

Click here to find out if your state is included in the colon cancer screening program.

The goal is to increase colon cancer screening rates in those states from 64% to 80% by 2014. According to the CDC, if everyone over the age of 50 had regular colon cancer screening tests and removed all precancerous polyps, as many as 60% of colon cancer deaths could be prevented.

Related Links

Gena Cook to speak at ACCC meeting

2011 March 19
by Brendon Smyth

Navigating Cancer’s CEO, Gena Cook, will be speaking at the Association of Community Cancer Centers (ACCC) 37th annual meeting in Washington D.C. March 24-26, 2011. Gena will be speaking on Saturday the 26th about the HITECH Act and Meaningful Use and what impact it will have for patients and their families. Below is an overview from the agenda.

With meaningful use objectives, physicians will be required to give patients electronic access to their health information and provide information and tools to help engage patients and their families in their care. How do meaningful use criteria relate to the goal of engaging patients and their families to improve care coordination? Which HITECH (Health Information Technology for Economic and Clinical Health Act) tools work best? What do patients want from their providers?

If you aren’t able to attend this year’s meeting in person, you can register as a virtual attendee and watch archived videos of all the presentations. More info here.

Related Links

Cooking with Cancer: Recipes for cancer patients

2011 March 16
by Brendon Smyth

Our mission at Navigating Cancer is to empower those diagnosed with cancer to be active participants in their care. To that end, we feature resources from trusted experts that can sometimes be hard to find in the vast expanse of the internet. One area that has been receiving more attention recently is nutrition, and we’re excited to introduce a new partner who is dedicated to helping cancer patients improve their diets.

Cooking with Cancer: Recipes for cancer patients

Cooking with Cancer is a non-profit organization started by Dr. Luis Pineda, an oncologist with over 26 years of experience. Dr. Pineda attended culinary school in 2003 to improve the nutrition and diet of cancer patients. Cooking with Cancer has created a group on Navigating Cancer, and each week we will add to their library a new recipe that has been prepared specifically with cancer patients in mind. Every meal features foods and preparation methods to help minimize the negative reactions certain foods can have with specific side effects from chemo and radiation treatment.

The first recipe (just in time for St. Patrick’s Day!) is a Green Tea Ice Cream that promotes good bowel function and has a cathartic effect. Join the Cooking with Cancer group on Navigating Cancer to get updates when new recipes are posted. To add a recipe to your personal library, simply click the “like” button at the bottom of the page. When you visit your profile the recipe will now be saved in your library folder.

Below is a guest blog post from Cooking with Cancer’s Gina Seibert with more info about the organization and their mission.

Have you ever wondered why there aren’t recipes on your menu for people with special needs? For over 25 years, Dr. Luis F. Pineda has listened to his patient’s symptoms and nutritional needs during their battles with cancer.  He found himself asking, “doesn’t everyone deserve the right to eat well?”  With this in mind, Dr. Pineda decided to return to school.  He enrolled in Virginia College’s Culinard program and studied the Art of Cooking.  He has now combined the Art of Cooking with his Knowledge of Medicine to create a new way to care for cancer patients.

cooking with cancer

An oncology physician’s routine of making hospital rounds reveals the same problem day in and day out, finding the same full cans of supplements and untouched trays because patients are unable or unwilling to eat.  In previous regiments to combat this issue, high calorie (carbohydrate base) liquid products were used through total parental nutrition or gastronomy tubes forcing nourishment, but with very little success.  Unlike healthy individuals, cancer patients lose their ability to smell and taste sugar and lipids, both necessary for normal diets.  Thoughtful and targeted changes are needed to achieve improvement in nutrition.

This is the foundation which Cooking With Cancer, INC. is built on.  A non-profit charitable organization that dedicates its resources and energy to research and development of new recipes for cancer patients, to provide education not only for patients afflicted with cancer, but also their family and friends.

Our mission is: “Helping those afflicted with cancer to enjoy a better quality of life through good food”. Our goal is to create awareness of patients’ poor quality-of-life due to neglected nutrition from lack of enjoyment in eating.  This problem has continued to be neglected, accepted, and even expected.

We support the right of everyone regardless of state in sickness or health to enjoy an enhanced quality-of-life and nutrition through good food, good eating, and good cooking.  We believe that patients undergoing treatment deserve the same benefit to enjoy the pleasure of food and nutrition.

Each recipe is intended to enhance taste for patients, calculated to heal the mouth, and to provide maximum nutrition.  They are meant to treat certain side effects, such as nausea, vomiting, diarrhea, abdominal pain, fluid retention, etc.

We hope you’ll find these recipes helpful and delicious! We’d love to get your feedback after trying them out, please leave comments after each recipe in the Cooking with Cancer group.

Bon Appetite!

Greg Maxfield to speak at Alabama Cancer Congress

2011 March 10

Navigating Cancer’s VP of Business Development, Greg Maxfield, will be speaking at the Alabama Cancer Congress (ACC) meeting April 1-3, 2011, in Birmingham, AL. Greg will speak about the HITECH Act, Meaningful Use and how it will impact patients and their families. Click here for a full agenda. The ACC is the representative body of all providers of cancer medicine in the state of Alabama.

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